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Alzhiemers petition

 
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Diane
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PostPosted: Thu Sep 25, 2008 10:47 am    Post subject: Alzhiemers petition Reply with quote

I'm not sure if anybody else has hd a loved one affected by Alzheimers and dementia, but if you have you will know how desperate this country needs more funding.
There is currently a petition being run to have accesss for more funding. If you agree and have a spare few moments would you please be kind enough to sign the below petition.

http://petitions.number10.gov.uk/terrypratchett/

I am also doing another petition although waiting for this to be accepted and will update when I get the clearence for it.

THANK FOLKS XXXXXXXXXXXXXX
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Mrs Miner
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PostPosted: Thu Sep 25, 2008 19:33 pm    Post subject: Reply with quote

Have signed Diane. Thankfully no-one in my family has been affected but I know plenty who have.

Hope this has some effect on our government who seem to want to ignore new treatments for all kinds of diseases for as long as possible. There are so many new drugs not being used as necessary because of expense to get them passed through the governments guidelines. Medications that could be used now are being held up for years in red tape! Its just wrong!
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Diane
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PostPosted: Thu Sep 25, 2008 23:22 pm    Post subject: Reply with quote

Thank you Gilly xxx

Also thank you to anybody else that will be signing. I'm going away tomorrow for the week to Menorca, leaving my 2 here .....no parties they have been warned!!! :laugh
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Gordy
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PostPosted: Thu Oct 02, 2008 11:11 am    Post subject: Reply with quote

I have signed it too.

Hope you had a nice holiday Di. xx
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Diane
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PostPosted: Tue Oct 07, 2008 18:11 pm    Post subject: Reply with quote

As many of you will know by now my Mum has Alzhiemers and is gravely ill. The treatment in hospital was disgraceful, and because of this I have started a petition of my own asking for more dementia nurses to be on wards within our own hospitals. Most of our problems would have been made far better had we have had a specialized nurse there.

My petition to 10 Downing Street has got approved!!!! Can we all join forces please and sign this.

Your petition reads:

We the undersigned petition the Prime Minister to Provide
dementia specialist nurse's within all hospitals in the UK

Dementia is one of the most significant health issues facing
the UK and the NHS. As the population ages, the numbers of
people diagnosed with dementiais increasing, and are expected
to double to 1.4 million over the next 30 years. Currently
there is a huge shortage of specialist dementia nurses within
our hospitals, because of this many patients with dementia are
not getting the proper care and understanding when placed in
hospital causing not only themselves but their loved ones a
great deal of distress. This is a growing problem and it wont
get any better unless more funds are available and more
training is given. We need more specialist dementia nurses
within our hospitals. Thank you.

Thanks for submitting your petition.

The link to sign is here and you will need to click into the reply you will get back via your email to confirm. Please make sure you also check your spam and junk folders in case it gets lost in there.

http://petitions.number10.gov.uk/Dementia-nurses/

Anybody who has had experience of Dementia and Alzhiemers will understand just how heartbreaking this really is. To not have your own Mum recognise you and to lose all the abilities she once had, to be the person she once was, it's like grieving for her death before she has even died, and to say its heartbreaking is an understatement. They call it the long goodbye. Its a very creul way not only for the sufferer but also the relatives and when we need somebody there to care and understand e.g. in hospital there is nobody. Mum a long time ago decribed it as being lost in space.

It only takes a minute to sign and it could eventually make all the difference to another family, even if not my own, what we went through should never have been allowed to happen and if i can help prevent anybody else from going through what we did it will be worth it.


MANY MANY THANKS

LOVE DIANE XXXXXXXXXXXXX
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Gordy
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PostPosted: Tue Oct 07, 2008 19:35 pm    Post subject: Reply with quote

Well done Di, things will never change unless we request for them to change.

I have signed it.
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Diane
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PostPosted: Tue Oct 07, 2008 19:41 pm    Post subject: Reply with quote

(((((((((((((((Alison your a darling thank you so much))))))))))))))) xxxxxxxxxxxxxxxxx
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Gordy
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PostPosted: Sun Jun 07, 2009 17:37 pm    Post subject: Reply with quote

The petition finished on the 6th and a reply has been issued.

http://www.number10.gov.uk/Page19506

What do you think Di, are you happy with the answer?

Any amount of money going into a cause is good and this does sound like alot, but is it really?

I am not sure how I feel about giving the responsibility locally rather than nationally, if it was national, by rights, all dementia sufferers should all get the same treatment, which would mean that the 60 Admiral Nurses (yes, just 60 in the whole of the uk) would be available to all.

Locally however, it allows people to judge where funds are best spent, puts the money in the right place without waste, but that all depends on whether there is enough funding to go round, some areas might need it more than others.
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Last edited by Gordy on Mon Jun 08, 2009 22:41 pm; edited 1 time in total
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Goldtrayler
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PostPosted: Mon Jun 08, 2009 20:16 pm    Post subject: Reply with quote

My dad works for terry pratchett :D
and i beat him at chess Razz

sorry - just wanted to add a mini claim to fame
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Diane
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PostPosted: Wed Jun 10, 2009 6:44 am    Post subject: Reply with quote

HI, Sorry I have not been around, my computer packed up and its taken a while to get sorted out. But hey I'm back lol.

I do aggree with you Ali, but at the end of of the day I feel like it is passing the buck, its not us its them and I bet the local councils would say its not our fault its theirs. Who ever what ever there is a massive shortage of dementia nurses and personally I think its a national disgrace. The hosiptal where Mum was ..which is meant to be the largest teaching hospital in Europe ..has NO dementia nurses, that's pretty worrying to say they are a teaching hospital, hence no up and coming dementia nurses being trained. The sad fact is dementia does not just affect the elderly, I know recently of one young girl who lost her Mum to Alzheimers and she was a little over 40.
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Gordy
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PostPosted: Thu Jun 11, 2009 0:33 am    Post subject: Reply with quote

I also think that passing the buck is what is going to happen. On paper the answer looks good but in reality it still isn't enough.

You mentioned a women in her 40's, I have also read that children can suffer from alzheimer's, which - like any condition - although it may be seen more at a certain age, it doesn't mean that you can't get it at a different stage in your life.

The statistics in the UK say that 700,000 suffer from alzheimer's, but John Suchet (who's wife has this condition) said in an article that there are just 60 of these admiral nurses across the UK, Shocked that less than one per 10,000 people and if you say that there is no training for them at the moment Diane, it will only get worse.

It is ok for the government to say they are pumping billions of pounds into the NHS, but I think it is going on far too many chiefs and not enough indians.

STOP SPENDING ALL OUR MONEY ON PEN PUSHERS AND TARGET HUNTERS, LETS HAVE SOME NURSING STAFF IN THE HOSPITALS!!

<jumps off soapbox>

<jumps back on for a sec>

AND SOME DECENT CLEANERS WITHOUT DISEASE INFESTED MOPS AND BUCKETS!!

<jumps off again and now has to have a fag to calm down> Lol.
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Mary
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PostPosted: Tue Jun 16, 2009 19:25 pm    Post subject: Reply with quote

Hi Diane,

I signed this on facebook. Do I need to sign it again?

Mary
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Gordy
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PostPosted: Tue Jun 16, 2009 19:39 pm    Post subject: Reply with quote

It has finished now Mary, so I hope not, lol.
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PostPosted: Tue Jun 16, 2009 19:41 pm    Post subject: Reply with quote

YEP I AM BEHIND
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Diane
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PostPosted: Wed Jun 17, 2009 12:54 pm    Post subject: Reply with quote

Don't worry its fine xxxx
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PostPosted: Tue Jun 23, 2009 20:16 pm    Post subject: Reply with quote

my uncle died recently (hence the funeral) and he had dementia, but as i live in norfolk, and him and family were on the isle of wight, it took meeting all my family down there to see how bad things were before he had died. it's something that people dont think about (including me), but my auntie became a recluse in her own home, for fear of leaving him alone, and because of the value of the house they lived in, they could get no help financially for help with my uncle, which really annoyed me. so anything i can do to help, or help raise awareness count me in!!
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Gordy
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PostPosted: Tue Jun 23, 2009 21:48 pm    Post subject: Reply with quote

That sounds awful, it does anger me when people are penalised for wanting their own home and maybe a nest egg, when others spend every penny they earn, sponge of the system and have nothing to show for it get all the help on offer.

I have heard about people who have had to sell their homes to pay for their treatment and although some people might say 'why should we pay when they have assets?' but that often means the spouse not only loses their beloved, but also loses their home, it isn't fair.

I am sorry for the lose of your uncle and let your aunt know I am thinking of her. xx
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Diane
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PostPosted: Tue Jun 23, 2009 22:37 pm    Post subject: Reply with quote

You just wouldnt believe how many thousands of pounds it cost my Dad is the last 7 months of Mums life, then add over 3,500 for her funeral added up to more than most people could earn in over a year!!! and now its left him with just enough to get by. What really gets me is the money that goes into reasearch is an insult and because the statistics are set to rise amoungst us all in the future years god knows what will happen when we get older.
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Gordy
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PostPosted: Tue Jun 23, 2009 23:52 pm    Post subject: Reply with quote

Strangely enough my brother was telling me about a related topic over the weekend which quite shocked me because I had never given it a thought.

Fluoride. A lot of research has gone into the adverse effects and many countries refuse to add it to the water systems, unlike the UK which my brother told me is being tested in parts of England as we speak, did you know???

I was always lead to believe that fluoride was good for you, but if you research it yourself you may come to the conclusion that it isn't.

http://www.historyofwaterfilters.com/fluoride-2.html

This is just one article that I have found but my brother showed me many more which shocked me.

Is this the reason the statistics are rising?????
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Gordy
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PostPosted: Wed Jun 24, 2009 0:27 am    Post subject: Reply with quote

This article doesn't mention dementia but it does talk about the government wanting to 'medicate' us without our knowledge or consent and do it even though it is against our human rights!!!!

http://www.timesonline.co.uk/tol/news/uk/health/article3295310.ece

It talks about fluoride causing cancer, the deterioration of our bones and 'unknown consequences'.

It also says the areas it is testing, the North East of England and The West Midlands, did you know that??? Do you live there???? Were you aware that your government is testing this out on you???

It does however talk about the good it is doing for our teeth, so why are there toothpastes out there promoting 'fluoride free' if it is so good for us.

There seems to be a 'convenient' misconception between calcium fluoride (which I always thought was good for you) and the sodium fluoride and hydrofluorosilicic acid which is used in most fluoridation programs, sodium fluoride is the one you will find in your toothpaste and they say that most tubes contain enough to kill a small child.

Hydrofluorosilicic acid is a direct by-product of pollution scrubbers used in the phosphate fertiliser and aluminium industries.

It is nearly as poisonous as arsenic, much more poisonous than lead and is used in rat poison.

Read the comments.

Forget the expenses rouse, these things are what they are really hiding.

One more link for you, scroll down to see when countries like Sweden banned this and then wonder why England is still doing it.

http://www.tauponatural.com/Articles/Toxic+News.+Fluoridation+do+we+want+it.html

But why?? Why does our country want to poison us?? It's simple, they wont use enough to kill us but it will be enough to make us docile, suppressed and stupid.... stupid people don't question things like expense accounts, they will just continue to do their mundane, low paid, yet vital jobs that are essential for the fat cats to live their luxury lifestyle.
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